Coping with loss, NICU, after the NICU and Autism. Many people wonder how we have coped over the past 6 years. I think both Stephen and I have gone through different phases of processing all that has happened.
The loss of Kaleigh was obviously devastating. But we take comfort in knowing we did everything we could to give her life. We struggled with decisions on how to keep her with us and we treasure the days we had and the opportunity to know her just a tiny bit and for a very short time. The day she passed away will be forever etched in our memory. It was the worst day I think of our entire lives. But over the years we have come to grips with it and try to focus on our boys. We could have easily lost Braden too. We would have never attempted to have another baby and now if we had to choose between Grayson and Kaleigh well you must know that decision couldn't be made. We are thankful that all the decisions were really made for us. We realize that nothing is truly in our control. We have to let ourselves be guided by the creator and all our decisions are given by him.
NICU life was made bearable by the wonderful nurses, doctors, and respiratory therapist at Baptist Hospital. They are truly the most amazing people taking care of the most fragile and precious babies ever born. Braden is our hero. He was the one who kept us going. All things for a long time were for him. He gave us a reason to wake up in the morning. He also gave us many terrifying moments when we thought we may lose him and those times have made us truly appreciate what we have with him. You can never truly appreciate your child no matter what his capabilities until you have lost a child. Until you have repeatedly almost lost another child. It makes you eternally grateful for LIFE. All LIFE whether it's a child with special needs or not it doesn't matter. You are grateful for all the little things. For being able to breathe another day. Watch your child grow. Every moment is special no matter what you are doing. Nothing is taken for granted ever.
Autism - in light of everything else that could have happened this was the last straw for me. It saddened me greatly and in itself probably wouldn't have dealt such an overwhelming blow if we hadn't been through so much already. So 2013 and two diagnosis threw me under the bus big time. But now that we have found a new path for Braden to help him be the best Braden he can be and with Grayson's amazing abilities that continue to lead him on the path to success we are in a much better place. Every day we strive to help our kiddos become self sufficient but we also strive to have fun and make their child hood like any other kids. We expose them to as many new things as possible to help them grow and learn new things.
We may not have an ordinary life but it is an extra ordinary life.
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- I am a stay at home Mommy to two beautiful boys ages 8 and 6. I am also Mommy to one little girl who blessed us with 13 days of life. Our road may be crazy and full of surprises but in this household Autism exist but doesn't define who my children are or will become. I am also a blogger. I love to write about our families crazy journey through life. We love, laugh and suffer sometimes but we stick together and always seem to keep growing and going.