Dr.'s visits

Today was long but went pretty good. Pulmonary actually said that I could wean Braden off his O's. This might take a while but Braden's sats were 99% without his O's during weight and vitals check. So they really didn't have any reason to argue that he isn't ready. I don't have to monitor him constantly anymore with his pulse ox. We just have to hook him up every three hours or so just to see how he is doing. So that is a big step in the right direction. Not to mention when you are with your child 24/7 you pretty much know when they are in distress. The nutritionists backed off the calories some since Braden is in a cast and not really active. We aren't worried so much about weight gain right now. The cast doesn't allow much room for growth and we don't want to cause discomfort. ENT said Braden's ears looked good. Braden finally passed his hearing test in both ears. As far as his airway goes three things need to take place. His reflux needs to be completely under control (whatever that means), he has to be completely off his Oxygen, and his airway needs to heal alot more than it has... So basically we have a long way to go before removal of the trach. By the way Braden hates to have his ears touched. He was a mad hatter for the ENT visit. I hated that was the last part of the day since he hated it so much.