Tuesday, February 21, 2017

Braden update Monday

Braden had a good night and finally got off his oxygen.  He he doing well.  He ate all of his bacon and cheese omelet this morning. He is drinking much better this morning and his color looks good. They will observe him till after lunch and if all goes well we can go home this afternoon.  Needless to say we are more than ready.  I miss my family and cannot wait to hug on lil G. I know B is ready to be home too. He had some emotional moments yesterday evening. Breaks my heart he has to go through it.

Monday, February 20, 2017

Braden Monday update

My apologies for the delay this morning.  Braden moved to the regular floor on 1 liter oxygen yesterday and had a great night.  He is eating and moving around more. However, he is still unable to maintain above 92 without oxygen.  He is on less than a liter and we think he is just weak.  He needs rest and food and one more night and hopefully by end of day he will be off oxygen and we will know if he can handle sleeping without it too. As much as we want to go home we can't do a repeat.  It would be harder on all of us than if we just stay and make sure he is good.  We will also keep him home for the week and then decide when he can go back to school.

Sunday, February 19, 2017

Braden Sunday update

Braden did great last night. We finally think he has turned the corner. He was more himself yesterday. He willingly sat up for long periods of time in bed and he even ate some applesauce.  Hoping by late afternoon evening he will be doing well enough to get out of the ICU.  Thank you all for continuing to keepBraden in your thoughts and prayers.

Saturday, February 18, 2017

Braden update Saturday

Well B couldn't stay on just oxygen last night. I'm sure we wore him out with the activity yesterday and he needs to build up additional strength to get past this step and move forward. He is on Cpap this morning and doing fine. We haven't seen the Drs yet but I am pretty sure the goals will be the same. We just keep trying till he takes off.  I finally got a decent shower. They had to give me one of the overnite rooms because the public ones didn't have hot water. I call the public ones jail showers. They are cold and creepy. We are afraid if I go home G won't be able to let me leave. He already has a really hard time with just letting me go out with the girls. B is on steroids and antibiotics. So now it's just a waiting game.

Friday, February 17, 2017

Braden Friday update

Yesterday went really well. B got on Cpap and then just oxygen support at 50% and did great all last night. They were going to try to move us to a transition room which is a new thing but unfortunately they couldn't get the person who approves it at that evening hour.  So we stayed here in ICU and this morning B had his little hiccup of dropping his oxygen to 84-85 and they did everything trying to get him back up but he wouldn't comply so now he is back on Cpap.  Just for a little bit. He has actually done the same thing the two mornings prior. Sorry to say this is not unusual for one of his stays so we aren't really alarmed by it. When he is ready to leave he will let us know. So we may or may not move today.  I guess it depends on how quickly he gets back off the Cpap.

Thursday, February 16, 2017

Braden update Thursday

Braden had a good night. No changes and until they can figure out how to get him off Bipap without nose nairs we are stuck with the big mask. His IV stopped working so early morning wasn't fun for him. But he is all fixed up with a new one and resting again peacefully. Thank you for the additional ecards yesterday.  He enjoyed hearing who sent them and looking at the pictures.  Child life brought him all kinds of really great goodies but he hasn't been in the mood to play. He has been sad and over it. Amazing he is still a good patient. But he does continue to admitly point everyone who comes in to the door. That's his way of saying nope go away.   Poor kid.

Wednesday, February 15, 2017

Braden update

B had a good night.  He was able to get some rest and his pressure settings turned down.  He does have a cold in addition to his pneumonia. Which we suspected was the same cold G had last week. The hope for today is to try vapotherm again. Which doesnt require the mask.  He is still on 60% oxygen support and stays in the 94-95 range.  We will also be following up with Bs Pediatrician after this stay.  Asthma will most likely be a new diagnosis for B.

Braden's car

Braden's car

Adjusted age ticker

Lilypie 1st Birthday Ticker

Braden's new Car

Braden's new Car
1/10/08

Braden's new car

Braden's new car
1/10/08

Braden

Braden
Chick Magnet outfit 2

Braden

Braden
Chick Magnet outfit

Braden

Braden
12/13/08

Braden

Braden
12/13/08

Braden

Braden
Mr. Smiley

Braden

Braden
having a better day

Braden

Braden

Braden

Braden
11/2/08

Braden

Braden
11/2/08

Chillin on his boppy

Chillin on his boppy

Trying to take off his mitten

Trying to take off his mitten

Tummy time

Tummy time

Braden

Braden

Braden

Braden
10/3/08

Braden

Braden
Look Mommy I pulled out my nose tube again...

Braden

Braden
10/1/08

10/01/08

10/01/08

Braden

Braden
9/30/08

Braden

Braden
9/30/08

Braden in Camo

Braden in Camo

Braden

Braden
9/12/08

Braden

Braden
9/12/08

Braden

Braden
9/12/08

Braden

Braden
He loves to put his hand under his cheek. So cute...

Braden

Braden
Another photo to show how big Braden is...

Braden

Braden
Please ignore me in these photos. I just wanted you to see how big Braden has gotten.

Braden

Braden
9/10/08

Braden

Braden
8/21/08

Braden playing with his keys

Braden playing with his keys

Braden

Braden
8/17/08

Braden

Braden
8/17/08

Braden and Mommy

Braden and Mommy

Braden and Stephen

Braden and Stephen
8/10/08

Braden and Stephen

Braden and Stephen
8/11/08

Braden

Braden
8/06/08

Braden

Braden
8/6/08

Braden

Braden
8/6/08

Braden

Braden
8/6/08

Braden

Braden
After his bath

Braden

Braden
7/31/08

Braden

Braden
Tummy time

Braden

Braden
Playing in his mirror.

Braden

Braden

Braden

Braden
7/30/08

Braden

Braden
7/30/08

Braden

Braden
7/30/08 Braden checking out his wrist toy.

Braden

Braden
7/20/08 Enjoying his swing

Braden

Braden
7/18/08

Braden

Braden
7/15/08 Braden and his NG tube

Braden

Braden
7/7/08 Braden before his Dr. visit. He was happy this morning.

Braden

Braden
7/7/08 Braden looking at his Daddy taking his photo.

Braden

Braden
7/2/08

Braden

Braden
7/2/08

Braden

Braden
7/2/08 In his BeBe Pod. He's not sure if he like it just yet.

Braden

Braden
6/19/08

Braden

Braden
6/19/08

Braden

Braden
6/18/08

Braden

Braden
6/12/08

Braden

Braden
6/11/08

Braden

Braden
6/9/08

Braden

Braden

Braden

Braden

Braden's new toy

Braden's new toy

Braden and his Daddy

Braden and his Daddy

Braden

Braden
Last nite on his trach nose since we had no power. He did really well.

Braden

Braden
5/31/08

Braden & his wubbanub pacifier

Braden & his wubbanub pacifier

Braden at home

Braden at home

Braden and his tummy time Boppy

Braden and his tummy time Boppy

Braden

Braden
5/29/08

Braden

Braden
5/29/08

Braden

Braden
5/27/08 Getting set up at home.

Braden

Braden
5/27/08 in the van.

Braden

Braden
5/27/08 On our way out of the hospital

Mommy and Braden :-)

Mommy and Braden :-)

Braden and nurse Sherry

Braden and nurse Sherry

Braden's home coming

Braden's home coming
5/27/08 In his carseat. :-)

Braden

Braden
5/24/08

Braden

Braden
5/23/08

Braden

Braden
5/22/08 Braden with Nurse Patty

Braden

Braden
5/20/08

Braden

Braden
5/20/08 Braden and his nurse Stacy

Braden

Braden
5/19/08

Braden

Braden
In one of Missy's outfits. Can you see how big he is.. in his newborn clothes.

Braden

Braden
With Nurse Rachel. He is not mad at her he's got gas. :-)

Braden

Braden
5/17/08

Braden

Braden
5/17/08

Braden

Braden
5/16/08

Braden

Braden
5/16/08

Braden

Braden
5/16/08

Braden

Braden
5/16/08

Braden

Braden
5/14/08

Braden

Braden
5/14/08

Braden

Braden
5/14/08

Braden

Braden
5/14/08

Braden

Braden
5/14/08

Braden

Braden
5/14/08

Braden

Braden
5/14/08

5/11/08

5/11/08
Braden

Braden

Braden
5/11/08

Braden

Braden
5/10/08

Braden

Braden
5/10/08

Braden

Braden
5/10/08

Braden

Braden
5/10/08 4th months old today

Braden

Braden
5/7/08

Braden

Braden
5/7/08

Braden

Braden
5/7/08

Braden

Braden
5/4/08

Braden

Braden
5/4/08 Dressed up in his puppy dog attire.

Braden

Braden
5/4/08 Look at those big beautiful eyes.

Braden

Braden
5/4/08

Braden

Braden
5/4/08 Taking his bottle like a big boy.

Braden

Braden
5/4/08

Braden

Braden
5/4/08 In cousin Riley's lightning outfit.

Braden

Braden
5/3/08

Braden

Braden
5/3/08

Braden

Braden
5/3/08

Braden

Braden
5/3/08

Braden

Braden
5/3/08

Braden

Braden
5/1/08

Braden

Braden
5/1/08

Braden

Braden
5/1/08

BRADEN

BRADEN
5/1/08

BRADEN

BRADEN
5/1/08

Braden

Braden
4/30/08

Braden

Braden
4/30/08

Braden

Braden
4/29/08

Braden

Braden
4/29/08

Braden

Braden
4/28/08

Braden

Braden
4/28/08

Braden

Braden
4/26/08

Braden

Braden
4/26/08

Braden

Braden
4/26/08 Frog feet pajamas from Ashley.

Braden & Family

Braden & Family
4/26/08

Braden & Family

Braden & Family
4/26/08

Braden

Braden
4/26/08

Braden

Braden
4/26/08

Braden

Braden
4/25/08

Braden

Braden
4/25/08

Braden

Braden
4/24/08 In his bouncy seat.

Braden

Braden
4/24/08

Braden

Braden
4/22/08

Braden

Braden
4/22/08

Braden

Braden
4/22/08

Braden

Braden
4/21/08

Braden

Braden
4/21/08 Getting a break from his bottle

Braden

Braden
4/20/08

Braden

Braden
4/20/08 King Braden in his frog outfit

Braden

Braden
4/19/08

Braden

Braden
4/19/08

Braden

Braden
4/19/08

Braden

Braden
4/19/08 Taking his bottle

Braden

Braden
4/19/08 Wide awake after his feeding.

Braden

Braden
4/18/08

Braden

Braden
4/18/08

Braden

Braden
4/15/08 In his big boy bed

Braden

Braden
4/15/08

Braden

Braden
4/13/08 Look both eyes. :-)

Braden

Braden
With both eyes open 4/13/08

Braden

Braden
4/12/08

Braden

Braden
4/11/08

Braden

Braden
4/11/08

Braden

Braden
4/11/08

Braden

Braden
4/10/08

Braden

Braden
4/10/08

Braden

Braden
4/10/08

Braden

Braden
4/9/08

Braden

Braden
4/9/08

Braden

Braden
4/7/08

Braden

Braden
4/7/08 still at Vandy

Braden

Braden
4/2/08

Braden

Braden
4/2/08

Braden

Braden
4/2/08 Daddy holding Braden for the first time.

Braden

Braden
4/1/08 Dino outfit and blanket

Braden

Braden
4/1/08

Braden

Braden
Braden and Nurse Missy who sang a very lovely song to him tonite.

Braden

Braden
4/1/08

Braden

Braden
4/1/08

Braden

Braden
3/31/08

Braden

Braden
3/31/08

Braden

Braden
3/31/08

Braden

Braden
3/31/08 Braden is now 36 weeks gestational age. He will be 3 months old on April 10th.

Braden

Braden
3/31/08

Braden

Braden
3/31/08 Sleeping so peacefully

Braden

Braden
3/31/08 Momma holding Braden

Braden

Braden
3/31/08 He's telling them to be quiet or he's thinking. You decide.

Braden

Braden
3/31/08 Patty pics

Braden

Braden
3/28/08 Such a cutie :-)

Braden

Braden
3/28/08 Braden's alligator apparel

Braden

Braden
3/28/08 The Green bean bag alien from Roswell.

Braden

Braden
3/25/08

Braden

Braden
3/25/08

Braden

Braden
3/25/08

Braden

Braden
3/25/08

Braden

Braden
3/24/08

FEEDJIT Live Traffic Feed

Braden

Braden
3/24/08

Braden

Braden
3/24/08

Braden in Camo

Braden in Camo
3/23/08

Braden in Camo

Braden in Camo
3/23/08

Braden

Braden
3/23/08

Braden

Braden
3/23/08

Braden

Braden
3/20/08 Look how big he's getting.

Braden's new isolette

Braden's new isolette
3/18/08

Braden's new Isolette

Braden's new Isolette
3/18/08

Braden

Braden
3/16/08

Braden

Braden
3/16/08

Braden

Braden
3/16/08 Photo from last nite while Mommy held Braden

Braden

Braden
3/15/08

Braden

Braden
3/15/08

Braden

Braden
3/14/08

Braden

Braden
3/14/08

Braden

Braden
3/14/08

Braden

Braden
3/14/08 This duck is not as big as it looks.

Braden

Braden
3/14/08

Braden

Braden
3/12/08

Braden

Braden
3/12/08

Braden

Braden
3/11/08 New bedding..

Braden

Braden
3/11/08 Both eyes open. Taken with the lights down and no flash. He won't open them otherwise.

Braden

Braden
3/11/08

Braden

Braden
3/11/08 Doesn't he look bigger?

Braden

Braden
3/11/08

Braden

Braden
3/10/08 2 months old today. :-)

Braden

Braden
3/9/08

Braden

Braden
3/9/08

Braden

Braden
3/9/08

Family photo

Family photo
3/7/08

Braden

Braden
3/7/08 Photo by Aunt Paula

Braden

Braden
3/7/08 Our first family photo

Braden

Braden
3/7/08 Braden's tooth. Photo courtesy of Nurse Patti

Braden

Braden
3/7/08

Braden

Braden
3/6/08

Braden

Braden
3/6/08

Braden

Braden
3/6/08

Braden

Braden
3/5/08

Braden

Braden
3/5/08 Photo by Aunt Paula

Braden

Braden
3/3/08 With his mittens and hat to warm him up after his bath.

Braden

Braden
3/3/08

Braden

Braden
3/3/08

Braden

Braden
3/3/08

Braden

Braden
3/3/08

Braden

Braden
2/29/08

Braden

Braden
2/29/08

Braden

Braden
2/29/08

Braden

Braden
2/29/08

Braden

Braden
2/28/08

Braden

Braden
2/27/08

Braden

Braden
2/27/08

Braden

Braden
2/27/08

Braden

Braden
2/26/08

Braden

Braden
2/26/08

Braden

Braden
2/05/08

Braden

Braden
2/25/08

Braden

Braden
2/22/08 Evening visit

Braden

Braden
2/22/08 Daddy's a little better at taking my photo.

Braden

Braden
2/22/08 This is what happens when Mommy forgets to turn off the flash.

Braden

Braden
2/18/08 You can see he is still very little even though he's reached 2 lbs.

Braden

Braden
2/18/08 Look zero tubes :-)

Braden

Braden
2/18/08

Braden

Braden
2/16/08 Is that a smile on his little face:-)

Braden

Braden
2/16/08

Braden

Braden
2/16/08

Braden

Braden
2/16/08

Braden

Braden
2/16/08 Still off the vent what a trooper.

Braden

Braden
2/14/08

Braden

Braden
2/14/08

Braden

Braden
2/12/08

Braden

Braden
2/11/08

Braden

Braden
2/11/08 Braden on his camo and frogs blanket. Very Cute.

Braden

Braden
2/11/08

Braden

Braden
2/11/08

Braden

Braden
2/7/08

Braden

Braden
2/6/08

Braden

Braden
On his own blue bunny blanket given to him by Judy G.. :-)

Braden

Braden
2/6/08 with his purple passy

Braden

Braden
2-4-08 Sometimes it's just too hard to get a non blurry shot. He is so small. But, this is a picture without tape on his chin.

Braden

Braden
2/2/08

Braden

Braden
2/2/08

Braden

Braden

Braden

Braden

Braden

Braden
2-1-08

Braden

Braden
Our little superman 2-1-08

Braden

Braden
1-29-08

Braden's new hat

Braden's new hat
1/29/08

Braden

Braden
1-28-08

Braden

Braden
1-28-08

Braden

Braden
1-25-08

Braden

Braden
1-25-08

Braden

Braden
1-21-08 All I want to do is sleep.

Kaleigh

Kaleigh
1-21-08 Both eyes open and a non blurry picture. Thank you Daddy.

Kaleigh

Kaleigh
1-21-08 with both eyes open. Mommy had a hard time with the camera so my apologies for the blurred photo.

Braden

Braden
1/20/08 Little Kaleigh's photo last nite didn't come out. They had her in the dark so it was difficult to get a good shot. :-(

Braden John

Braden John
1-19-08 Still sleeping away and really tired but doing very well.

Kaleigh Grace

Kaleigh Grace
1-19-08 She doesn't look so comfortable but they had just flipped her back on her back. She would rather be on her belly.

Kaleigh

Kaleigh
1-19-08 Good pic of her little face.

Braden

Braden
1-19-08 resting peacefully from a hard day of breathing on his own.

Braden

Braden
1-18-08 with his purple passy

Kaleigh

Kaleigh
1-18-08 evening

Kaleigh 1-18-08

Kaleigh 1-18-08
Our little hero has showed us that she is a fighter.

Braden

Braden
1-18-08 first day off his ventilator. :-)

Kaleigh 1-17-08

Kaleigh 1-17-08
Resting so she can get stronger.

Braden 1-17-08

Braden 1-17-08
Has his lamp off today. So we can see his cute little face.

Kaleigh

Kaleigh
Laying on her pink gingham blanket. They just changed out that morning.

Braden

Braden
That's Mommy's hand on Braden's little head. In an effort to calm him.

Kaleigh

Kaleigh
They had Kaleigh on her side today. What a large diaper she has on.

Braden

Braden
Loves to sleep on his tummy. Kaleigh likes it too.

Braden

Braden
1/14/08 Stretched out and relaxed

Kaleigh

Kaleigh
1/14/08 crinkling her forhead

kaleigh grace

kaleigh grace
1/12/08

Braden John

Braden John
1/12/08

Blog Archive

About Me

My photo

I am a stay at home Mommy to two beautiful boys ages 8 and 6.  I am also Mommy to one little girl who blessed us with 13 days of life.  Our road may be crazy and full of surprises but in this household Autism exist but doesn't define who my children are or will become.  I am also a blogger.  I love to write about our families crazy journey through life.  We love, laugh and suffer sometimes but we stick together and always seem to keep growing and going.