Saturday, July 30, 2016

Summer 2016

Summer 2016

Well a new post is long over due. We had a crazy busy summer.  Braden had camp at IA for two weeks straight for the first few weeks of June.  Then Grayson had Art camp which he loved.  We had a brief break which allowed me to pack us up for Panama City Beach and we had an amazing vacation at Splash Resort.  It took a little while for Braden to settle in.   He wasn't a big fan of the beach but we rented Cabana chairs for two days and the shade along with the baby powder trick to get the sand off his feet worked pretty well for him while the rest of us got to enjoy some sand and sun. Grayson enjoyed the beach but the lure of the pool was just too much.   He wanted to spend all his time there.  But he did manage to play in the sand and beach waters for a little bit and we are hoping next year they will spend more time on the beach.   As with everything they need time to embrace new things.  I will say Braden use to would have never even walked on the sand but he did it with little resistance. He really enjoyed the sprayer for your feet going back up towards the pool that cleans your feet off.  That was the best.  He also throughly enjoyed the splash area and mostly just sat and watched the other kids. But he did sit and tread through the water and much to our amazement he went under the bucket one time.  There is a huge bucket at the top of the splash area that fills with water and then dumps over with a pretty good amount of force and a lot of water.  I didn't get a picture because honestly I was in shock at that moment.  But he went over, stood under it and looked up waiting for it to dump on him.  He didn't freak out or run.  He took it like a champ.   He only did it once but Grayson wouldn't have a thing to do with it and he is the daredevil of the two.  It's crazy how they still surprise us.   Braden and Grayson both loved the lazy river so when their cousins came to visit us they played on the lazy river a good bit of the time.  We were able to enjoy several nights out to dinner and really enjoyed eating out with my cousin and her family.  We haven't seen them since the kids were really little.  So it was really nice to catch up.   All in all the trip was a great success.  So much so we plan to go back next summer.  

After vacation we had another little break and then B went back to camp.  Unfortunately he got sick and now has an ear infection.  G  just had his open house at school and he walked in like he owned the place.  He is more than ready to start school on Monday and did great talking to his new teacher and exploring the classroom.  He wasn't very happy that he only gets to go one day next week.  I didn't fully understand the phase in concept. Not good.  But Nana is coming down to help keep him busy so we aren't couped up for another several days now that B is sick.  Plus our washer is broke and the repairman is coming Tuesday so another boring day for a 6 year old. 

Hoping to get B all cared for and feeling better before he goes back to school on the 17th.  He didn't even need prompts for his Dr visit. Poor kid felt that bad.  He is like help me please.  Sweet B. 

We are looking forward to this upcoming school year.  We feel like this is going to be a really good year for both of the boys.  They are in good hands and we are thankful.  

On another note I have gotten at least one but sometimes two girls nights a month.  Once the boys are back in school I am looking forward to lunches and pedicures with my friends.  Makes up for being on the road several hours a day. But we all know B is worth it.  








Thursday, April 21, 2016

Day 20-21 Autism Awareness

Pardon any typos and lack of paragraphing.  Lots going on around here.

Haircuts

I don't know if this is an issue for all autism families but boy it has been for ours.  When the boys were little cutting their hair was a sensory nightmare.  Oh the crying and oh how traumatic for them.  It's no wonder some of us just let our boys have long hair. Sometimes it's just not a battle worth fighting.  Being a first time Mom to a micro preemie was full of unpleasant experiences.  Medically necessary things that had to be done regardless of how much drama it caused our child. So I had already been in the trenches of dealing with the unpleasant.  I think that's why this battle wasn't something I couldn't handle. For B we were able to have my long time stylist cut his hair. We used the iPad as a distraction and even though he hated it and cried he let us do it.  When G was little it was literally a nightmare.  His little body would stiffen up. He would shake. He would scream. He was completely traumatized every time no matter what we did. I took them to Sports clips for a little while and the stylist was super fast and kind and we got through it. But as G got older his distress got worse not better. B however became more tolerant.  The anxiety I felt trying to take them was growing and I just didn't want to have to put them through it anymore.  So what can you do?  Well I always wanted to do hair when I was in High school.  I had already become literally the jack of all trades even before becoming all things to B. So I watched YouTube videos, bought some clippers and started a new journey to cut the boys hair. At first I literally had to restrain G by pinning him down.  I won't explain how I did it.  But trust me he was safe and unharmed. We would get through the bulk of the process and I trimmed him up during naps. Yup had to trim him while he slept. He couldn't be still enough while he was awake.  B struggled some but for the most part was easier than G.   I can see why outsiders who know absolutely nothing about autism might think our kids are bad. All they see is what looks like a tantrum.  They have no idea that our kids are in pain. That they are struggling with sensory issues that can at times make them feel like their on fire.  I remember through all the snot and tears and fighting after Gs hair was cut he would say thank you.  He would look in the mirror and be happy with his haircut and then fall asleep because it literally wore him out.  B was usually fine after but both have to have a bath and fresh clothing after haircuts. That's  another plus to doing them at home. The bits of hair have to come off or they suffer.  I also blow dry the hair off in between changing clips on the clippers.  So the next time you see a little boy with long hair. Don't judge. Not every Mom has been through what I have and believe me cutting hair was very hard on me. It was an emotionally draining job and I was just as exhausted doing it. It's so much easier for someone who doesn't have to do it to say "you can't let them have long hair".  Well yes you can and any Mom who chooses to let that go should not be tormented for it. If you yourself think you could do it to your child under the same circumstances you would be surprised at how many would actually fail miserably.  It's also very different if it's not your own kid.  

I will not be posting daily. As some of you already know B has pneumonia.  We found out yesterday and he is pretty miserable.  Thankfully he is at home but I will be really busy trying to take care of him. We are hoping since we caught it early he will stay out of the hospital.  Prayers are appreciated and as always thank you for sticking with us. We appreciate all of you.  For those that have donated to our March of dimes 2016 site. Thank you from the bottom of our hearts.  We were ready to walk this weekend and now we won't be able to attend.   Such a disappointment but we are not without representation.  Stephen's co-workers have a team and our friend Cheryl plans to be there too.  If you can please go out an support this wonderful cause. 

Tuesday, April 19, 2016

Day 18-19 Autism Awareness

Autism and secondary illness

So remember when I posted about sleep and how great things were going?  Well Spring is the absolute worst on B. His allergies are soooo bad. This past week he was up between 3:30-4 am.  Which is useless to try and make him go back to sleep when we get up at 5:15 am to get ready for school.  The past few months he is in school a few weeks then out a week due to being sick.  He is on meds. We diffuse oils and this year we just can't beat it.  Last night he was coughing and coughing.  The only reason he got any sleep at all is because I let him lay on me.  Which isn't a comfortable way to sleep.  It's been an exhausting couple of weeks for me for sure.  It's really hurts progress when he is inconsistently in school. He was on a roll making such good progress and then here we are again at home. I try to let him go but days like today when his drainage is so bad he can hardly catch his breath from coughing you can't expect him to be able to work. Plus you put him at risk for other illness.  You can't let him get too weak during these times it's too risky. 

So I guess I am letting you all know that Bs autism isn't nearly as rough as his illnesses.  Honesty there is no telling how great he would be doing if this huge obstacle hadn't gotten in his way. Micro preemie beginnings stink. The effects linger and over time could bring new health problems.  That hurts worse than his diagnosis of Autism. I guess that's a lesson learned. A gift in a terrible trial.  Keeping all things in perspective.  

Thursday, April 14, 2016

Day 14 Autism Awareness

Regret, Denial and grief

As I think back on the boys progress I want to share this with the world. Everyone goes through a grieving process no matter how much you love your child. Many will be in denial and want to avoid a diagnosis.  I know I did with G and I had plenty of experience with special circumstances and knew better.   But first and foremost it's vital that despite those feelings you get it done and the therapy ball rolling as soon as possible to get your child the services they need.  The loss of precious time you can't get back brings regret.  A regret that you can't fix or take back. 

B started services at 11 months. G at 2 1/2.  There is no doubt neither of them would be in the great place they are now without it.  Being a preemie Mom saved our family because I already had friends who were therapist and the knowledge to work the system and get things done.  Not all families know what's available and how to get it. The state isn't always willing to just hand you the info. It cost them money. You have to fight for it. You have to have an awesome pediatrician to back you up and help you write letters and tell the state and insurance this is all medically necessary.  It's hard work, it takes time and sometimes depending on your circumstances it cost a lot of money. But it's worth it. Every penny all the hard work it's all worth it. 

I was having lunch with a friend today. We were talking about how far our kids have come and what it use to be like. Lots of kicking, screaming, hair pulling, gagging, refusal to do the simplest of things and the list goes on. Without intervention we would be in that same situation only our kids would be bigger and a lot harder to manage. Or maybe we wouldn't be able to manage them at all.  I remember an outing with Bs teacher and how she thought we might need help getting out of our car or back in on a field trip recently because I had both boys. I told her "nope we got this". She gave me an odd look and said " wow I remember last year when you had your hands full and you seemed to struggle managing them". I said " I know aren't they amazing?"  I have several post I think I shared the fears of grocery store outings and no longer fitting in the cart.  That's no longer an issue. All this growth from getting early services and getting them in the right schools.  It takes time but we got here and things are so much better.  

Wednesday, April 13, 2016

Day 13 Autism Awareness

The importance of routine

So before I go straight into topic I want to say the boys are having a really good week.  B is now fully settled into his new class now that illness is out of the way and is really making progress in all areas. Can't wait to see what is to come. But very encouraging stuff. We had a meeting with Gs teacher and had his transition meeting with several other staff members.  He will start Kindergarten with an IEP that only has one concern "anxiety".  No pull outs and no therapies.  We kept the consult portion in place to help G with transition and any issues that may arise in the future.  So exciting for him and proud.  Also we finally finished Gs sleep study and he no longer needs melatonin to sleep through the night.  Yay!!!

So today's topic is routine. I am not talking just about the daily schedule. I am talking about if we have eaten out somewhere in the past and at random choose something else. Well G can't handle it.  For example when he always went to McDs for a biscuit. I could give him all the warning necessary for the change to go to Cracker Barrel and he would have a meltdown in the parking lot and we would end up going to McDs. Now most autism parents know that you can't just make your kid go somewhere when this happens. Like people say grin and bear it.  It's not that kind of situation.  These kinds of things have to do with comfort and security. Expectation and coping ability. Sometimes it's about the environment. Many factors play into why our kids can't go to another place that isn't their place.  This is an issue that still needs progress.  It's not as bad but still needs work.  Unless we are with other people then he is to distracted in having fun to care.  But also the expectation to eat something isn't there which helps.  For B it's not about where we eat or go. His routine is about what he needs to take with him. In our home it's about things being in their place and if something isn't suppose to be there he wants it moved.  As I stated in a previous post it's about all the fans being on before he can settle in. Or if we are at someone's home he has to see what's behind every door and get into all the things that spark his interest. It's a real struggle. He can't settle till he knows all areas. That's why it's nice to go to places we have been before like Nana's or Aunt Leslie's. 

In regards to the boys daily routine it's best to have a schedule. B is fairly laid back about most things but he does enjoy getting out of the house and going to school. He adjust fairly well to changes in the routine as long as they aren't to drastic and he isn't too tired.  G on the other hand needs information in advance. Preferably several days planned at a time. He use to be very ridged and if you didn't stick to the time schedule he would start to fall apart. Now he is more flexible. He can be reasoned with to a point. But for example last week we were running late for school. We rarely run late. As we were getting close to school the traffic was stopped because of car rider line traffic. He started to get upset thinking we are going to be late. He ask "why aren't the cars moving"?  Then says "come on cars move". Lol. Then comes the blinking and the holding back of tears.  He will tell you he is ok but you can tell he really isn't.  He gathered himself the best he could and got out. As he is walking towards school he is wiping his eyes trying to hold back the tears. It takes more time to get over things but he is trying. He will have the same difficulty if I am not close for pick up in the afternoon as well.

So those are just a few examples of our struggles with routine. I hope you enjoyed today's post and that you will understand just a little better the next time you see a child struggling with their Mom in a parking lot. 


Tuesday, April 12, 2016

Day 12 Autism Awareness


Therapy, School and other interventions

When B was little he came home with a trach,  and oxygen.  A few moths later he had to get a gtube. Then several month after that we found out he had hip dysplasia in both hips. That resulted in a spica cast for several months. Then a brace for several more months. Well every natural growth process or developmental milestones were impeded by all the un-natural things that were medically necessary for his survival. All that before knowing he had autism.  So to say the least therapy was THE most valuable thing in his early life.  If I were to meet any  Mom who just had a micro preemie I would tell her to get her early intervention ball rolling asap as well as any autism Mom.  Braden didn't get started till he was 11 months because of red tape and hounding and following up and still nothing. Till I contacted Lyttle Fox therapy and Sharon snatched Braden up and helped me get everything going.  We are so thankful for them and the team that took on Bs case.  He made slow but steady progress and eventually by age two and half things started being taken away. Like the spica cast, then trach, then gtube.  B started crawling almost as soon as his cast come off and shortly after that he started walking at almost 3 years old. From there he had his trach removed. All this time he is receiving two times per week OT, PT and feeding therapy.  Early intervention.  He started school at age 3 but was on a home bound program because of his health issues. During the summer we had introduced him to an iPad. Which was a first for us as well.  This was the first tool that showed us just how much Braden knew. He started using learning apps.  It only took him a few days to pick up on how to use it. We were amazed.  The next year we showed his teacher how he knew his colors, alphabet and numbers and she was amazed.  At that time his OT skills still weren't very strong. So it was more difficult to know where his was academically. So thankful for technology.  As school became tougher. He started on half days and then to full days by age 6 Bs stamina was just not good enough.  After school therapy began to take a toll on him and he just wasn't doing well in school or therapy.  Part of it was teacher and school related.  But a portion of it was exhaustion.  At 6 1/2 we knew something had to be changed and I decided to go to a special needs event that show cases vendors that specialized in summer camps for special needs.  That was the best decision.  I walked in and shortly after met Kelly from Illuminate Academy. I am tearing up just typing about it.   Everything out of her mouth screamed this is it the all encompassing learning environment. Everything I had ever hoped could be provided for B.  I actually walked out with just the information and then my gut wouldn't let me leave.  I texted Stephen told him what it was and how much. He said go for it. Went back filled out the papers and just prayed this was everything she said it was going to be.  Well that summer B learned more and progressed more than he had his entire school year.  As well as he was SO Happy again.  He had lost his happy and to find that again meant so much to us as parents.  So after a successful time at summer camp we signed him up to go to school at IA too.  We are very pleased. He gets a very well rounded education that includes life skills, academics, P.E., music and art. He gets ABA and SCERTS programs. He is always happy after school.  We know he is well taken care of and even though he is till exhausted after school. He doesn't need to go to private therapy anymore.  Everyone has a different journey and different resources.  But for us this has worked. Things have fallen into place and we have been able to make things right for B. 

Grayson's journey has been very different. He was born full term and when he wasn't speaking at 2 our friend (Bs speech therapist) suggested we have him evaluated.  We had lots of behavioral issues before then but believe it or not this Momma was in serious denial.  For good reason. We had already been through so much with B and the loss of his twin sister. There is only so much one can endure. But we really don't get to choose how many trials we are given.  So G gets therapy and boom the flood gates open and he is talking and even starts reading. So we are good right?  Lol. Still in denial. Stephen however was not. So Sharon tells me she really things I should have him tested.  So I found out that if I wait till G is 3 it would take months to get an eval.  So I bit the bullet made the call and sure enough because of his age we got a free testing with in weeks as long as we participated in a study Vandy was doing. So we did it and he got his diagnosis.  Big whammy for this Momma. After that I knew B was next and it took 8 months to get him in and I had to do several follow up calls to ensure his spot. That was very unpleasant for many reason.  So again another diagnosis with a lot we didn't want to hear. Mostly because we feel the testing was unfair and not done in a way to appropriately evaluate his intellectual ability. Back to G. So we just went with the flow from there we knew exactly what services he needed. OT, PT, speech and early intervention. Which meant G got to start school at age 3 too and luckily he continued to progress leaps and bounds. So when we stopped after school therapy G had tested out of the need anyway.  Public school kept therapies in place and he has been receiving those this year too and he will be 6 in May.  

Everyone's child is different. What works for us may not work for someone else.  Our journey is just our experience and not a guide to someone else's journey. But I myself live to find other blogs and learn things I may not have known if I didn't research.  I really enjoy blogs from young adults with autism that share what their lives are about and to watch shows showing adults with autism taking on jobs and college. It helps to know what we may expect for our boys future.  

Monday, April 11, 2016

Day 11 Autism Awareness

Some random facts even I didn't know about autism

http://facts.randomhistory.com/2009/09/21_autism.html

The link I am providing is called 46 random facts about autism.  There were several I have never seen before and found interesting so I wanted to share them with you.  These are in random order. I just listed them in the order of my interest. But if your intrigued by the ones I listed you may want to take a look at the website above. 

#19 1 in 10 extremely premature babies tested positive for autism. (Weird wording). Children who are born more than 3 months early have double the expected rate of autism.  

It's obvious why this was my number one point of intrigue. I had always pondered if Bs micro preemie history played a role however never had any research that stated it. So for the rest of us micro preemie Moms who have wondered. Here you go. 

#21 Autism is the fastest growing disability in the US.  Goes along with #10 Autism is more common than childhood cancer, diabetes and AIDS combined.  

That means autism needs more research.  It should be important to everyone not just those living in it or with it. 

#25 scientist are unclear as to why about 20-30% of autistic children develop epilepsy by the time they reach adulthood. 

This one made me sad and at least now I know and to be aware is better than not. Hopefully this will be a bullet both boys dodge.  Add to the list in prayer. 

#31  families with one autistic child the risk of having a second child with autism is 5% or one in 20. This is greater risk than general population. 

Well you all know what happened here as well. 

#41 Mothers who have autoimmune disease such as Type 1 diabetes, rheumatoid arthritis, and celiac disease have up to 3 Xs a greater risk for having a child with autism. 

This concerns me for several friends I know who have kids with these diseases. Who have not yet had children. 

#11 researchers have found that the area of the brain called the amygdala was on average 13% larger in young children with autism than in young children without autism. 

That's just one that makes you think hmmm. Odd finding I may have to research that one a little further. 

#4 mutations on chromosome 16 have been tied to autism. The glitch is in a DNA region that contains "Morpheus" genes or genes which historically have changed very rapidly as humans evolved.  In other words the same method that helped evolve human intelligence may contribute to autism.  

Now this one refers to evolution in its wording so another odd finding that I want to look into a little further.  

But these are definitely new to me and some are useful and some are just interesting and make me want to dig a little more.  But I thought I would share these since Some are new to me as well.  


Braden's car

Braden's car

Adjusted age ticker

Lilypie 1st Birthday Ticker

Braden's new Car

Braden's new Car
1/10/08

Braden's new car

Braden's new car
1/10/08

Braden

Braden
Chick Magnet outfit 2

Braden

Braden
Chick Magnet outfit

Braden

Braden
12/13/08

Braden

Braden
12/13/08

Braden

Braden
Mr. Smiley

Braden

Braden
having a better day

Braden

Braden

Braden

Braden
11/2/08

Braden

Braden
11/2/08

Chillin on his boppy

Chillin on his boppy

Trying to take off his mitten

Trying to take off his mitten

Tummy time

Tummy time

Braden

Braden

Braden

Braden
10/3/08

Braden

Braden
Look Mommy I pulled out my nose tube again...

Braden

Braden
10/1/08

10/01/08

10/01/08

Braden

Braden
9/30/08

Braden

Braden
9/30/08

Braden in Camo

Braden in Camo

Braden

Braden
9/12/08

Braden

Braden
9/12/08

Braden

Braden
9/12/08

Braden

Braden
He loves to put his hand under his cheek. So cute...

Braden

Braden
Another photo to show how big Braden is...

Braden

Braden
Please ignore me in these photos. I just wanted you to see how big Braden has gotten.

Braden

Braden
9/10/08

Braden

Braden
8/21/08

Braden playing with his keys

Braden playing with his keys

Braden

Braden
8/17/08

Braden

Braden
8/17/08

Braden and Mommy

Braden and Mommy

Braden and Stephen

Braden and Stephen
8/10/08

Braden and Stephen

Braden and Stephen
8/11/08

Braden

Braden
8/06/08

Braden

Braden
8/6/08

Braden

Braden
8/6/08

Braden

Braden
8/6/08

Braden

Braden
After his bath

Braden

Braden
7/31/08

Braden

Braden
Tummy time

Braden

Braden
Playing in his mirror.

Braden

Braden

Braden

Braden
7/30/08

Braden

Braden
7/30/08

Braden

Braden
7/30/08 Braden checking out his wrist toy.

Braden

Braden
7/20/08 Enjoying his swing

Braden

Braden
7/18/08

Braden

Braden
7/15/08 Braden and his NG tube

Braden

Braden
7/7/08 Braden before his Dr. visit. He was happy this morning.

Braden

Braden
7/7/08 Braden looking at his Daddy taking his photo.

Braden

Braden
7/2/08

Braden

Braden
7/2/08

Braden

Braden
7/2/08 In his BeBe Pod. He's not sure if he like it just yet.

Braden

Braden
6/19/08

Braden

Braden
6/19/08

Braden

Braden
6/18/08

Braden

Braden
6/12/08

Braden

Braden
6/11/08

Braden

Braden
6/9/08

Braden

Braden

Braden

Braden

Braden's new toy

Braden's new toy

Braden and his Daddy

Braden and his Daddy

Braden

Braden
Last nite on his trach nose since we had no power. He did really well.

Braden

Braden
5/31/08

Braden & his wubbanub pacifier

Braden & his wubbanub pacifier

Braden at home

Braden at home

Braden and his tummy time Boppy

Braden and his tummy time Boppy

Braden

Braden
5/29/08

Braden

Braden
5/29/08

Braden

Braden
5/27/08 Getting set up at home.

Braden

Braden
5/27/08 in the van.

Braden

Braden
5/27/08 On our way out of the hospital

Mommy and Braden :-)

Mommy and Braden :-)

Braden and nurse Sherry

Braden and nurse Sherry

Braden's home coming

Braden's home coming
5/27/08 In his carseat. :-)

Braden

Braden
5/24/08

Braden

Braden
5/23/08

Braden

Braden
5/22/08 Braden with Nurse Patty

Braden

Braden
5/20/08

Braden

Braden
5/20/08 Braden and his nurse Stacy

Braden

Braden
5/19/08

Braden

Braden
In one of Missy's outfits. Can you see how big he is.. in his newborn clothes.

Braden

Braden
With Nurse Rachel. He is not mad at her he's got gas. :-)

Braden

Braden
5/17/08

Braden

Braden
5/17/08

Braden

Braden
5/16/08

Braden

Braden
5/16/08

Braden

Braden
5/16/08

Braden

Braden
5/16/08

Braden

Braden
5/14/08

Braden

Braden
5/14/08

Braden

Braden
5/14/08

Braden

Braden
5/14/08

Braden

Braden
5/14/08

Braden

Braden
5/14/08

Braden

Braden
5/14/08

5/11/08

5/11/08
Braden

Braden

Braden
5/11/08

Braden

Braden
5/10/08

Braden

Braden
5/10/08

Braden

Braden
5/10/08

Braden

Braden
5/10/08 4th months old today

Braden

Braden
5/7/08

Braden

Braden
5/7/08

Braden

Braden
5/7/08

Braden

Braden
5/4/08

Braden

Braden
5/4/08 Dressed up in his puppy dog attire.

Braden

Braden
5/4/08 Look at those big beautiful eyes.

Braden

Braden
5/4/08

Braden

Braden
5/4/08 Taking his bottle like a big boy.

Braden

Braden
5/4/08

Braden

Braden
5/4/08 In cousin Riley's lightning outfit.

Braden

Braden
5/3/08

Braden

Braden
5/3/08

Braden

Braden
5/3/08

Braden

Braden
5/3/08

Braden

Braden
5/3/08

Braden

Braden
5/1/08

Braden

Braden
5/1/08

Braden

Braden
5/1/08

BRADEN

BRADEN
5/1/08

BRADEN

BRADEN
5/1/08

Braden

Braden
4/30/08

Braden

Braden
4/30/08

Braden

Braden
4/29/08

Braden

Braden
4/29/08

Braden

Braden
4/28/08

Braden

Braden
4/28/08

Braden

Braden
4/26/08

Braden

Braden
4/26/08

Braden

Braden
4/26/08 Frog feet pajamas from Ashley.

Braden & Family

Braden & Family
4/26/08

Braden & Family

Braden & Family
4/26/08

Braden

Braden
4/26/08

Braden

Braden
4/26/08

Braden

Braden
4/25/08

Braden

Braden
4/25/08

Braden

Braden
4/24/08 In his bouncy seat.

Braden

Braden
4/24/08

Braden

Braden
4/22/08

Braden

Braden
4/22/08

Braden

Braden
4/22/08

Braden

Braden
4/21/08

Braden

Braden
4/21/08 Getting a break from his bottle

Braden

Braden
4/20/08

Braden

Braden
4/20/08 King Braden in his frog outfit

Braden

Braden
4/19/08

Braden

Braden
4/19/08

Braden

Braden
4/19/08

Braden

Braden
4/19/08 Taking his bottle

Braden

Braden
4/19/08 Wide awake after his feeding.

Braden

Braden
4/18/08

Braden

Braden
4/18/08

Braden

Braden
4/15/08 In his big boy bed

Braden

Braden
4/15/08

Braden

Braden
4/13/08 Look both eyes. :-)

Braden

Braden
With both eyes open 4/13/08

Braden

Braden
4/12/08

Braden

Braden
4/11/08

Braden

Braden
4/11/08

Braden

Braden
4/11/08

Braden

Braden
4/10/08

Braden

Braden
4/10/08

Braden

Braden
4/10/08

Braden

Braden
4/9/08

Braden

Braden
4/9/08

Braden

Braden
4/7/08

Braden

Braden
4/7/08 still at Vandy

Braden

Braden
4/2/08

Braden

Braden
4/2/08

Braden

Braden
4/2/08 Daddy holding Braden for the first time.

Braden

Braden
4/1/08 Dino outfit and blanket

Braden

Braden
4/1/08

Braden

Braden
Braden and Nurse Missy who sang a very lovely song to him tonite.

Braden

Braden
4/1/08

Braden

Braden
4/1/08

Braden

Braden
3/31/08

Braden

Braden
3/31/08

Braden

Braden
3/31/08

Braden

Braden
3/31/08 Braden is now 36 weeks gestational age. He will be 3 months old on April 10th.

Braden

Braden
3/31/08

Braden

Braden
3/31/08 Sleeping so peacefully

Braden

Braden
3/31/08 Momma holding Braden

Braden

Braden
3/31/08 He's telling them to be quiet or he's thinking. You decide.

Braden

Braden
3/31/08 Patty pics

Braden

Braden
3/28/08 Such a cutie :-)

Braden

Braden
3/28/08 Braden's alligator apparel

Braden

Braden
3/28/08 The Green bean bag alien from Roswell.

Braden

Braden
3/25/08

Braden

Braden
3/25/08

Braden

Braden
3/25/08

Braden

Braden
3/25/08

Braden

Braden
3/24/08

FEEDJIT Live Traffic Feed

Braden

Braden
3/24/08

Braden

Braden
3/24/08

Braden in Camo

Braden in Camo
3/23/08

Braden in Camo

Braden in Camo
3/23/08

Braden

Braden
3/23/08

Braden

Braden
3/23/08

Braden

Braden
3/20/08 Look how big he's getting.

Braden's new isolette

Braden's new isolette
3/18/08

Braden's new Isolette

Braden's new Isolette
3/18/08

Braden

Braden
3/16/08

Braden

Braden
3/16/08

Braden

Braden
3/16/08 Photo from last nite while Mommy held Braden

Braden

Braden
3/15/08

Braden

Braden
3/15/08

Braden

Braden
3/14/08

Braden

Braden
3/14/08

Braden

Braden
3/14/08

Braden

Braden
3/14/08 This duck is not as big as it looks.

Braden

Braden
3/14/08

Braden

Braden
3/12/08

Braden

Braden
3/12/08

Braden

Braden
3/11/08 New bedding..

Braden

Braden
3/11/08 Both eyes open. Taken with the lights down and no flash. He won't open them otherwise.

Braden

Braden
3/11/08

Braden

Braden
3/11/08 Doesn't he look bigger?

Braden

Braden
3/11/08

Braden

Braden
3/10/08 2 months old today. :-)

Braden

Braden
3/9/08

Braden

Braden
3/9/08

Braden

Braden
3/9/08

Family photo

Family photo
3/7/08

Braden

Braden
3/7/08 Photo by Aunt Paula

Braden

Braden
3/7/08 Our first family photo

Braden

Braden
3/7/08 Braden's tooth. Photo courtesy of Nurse Patti

Braden

Braden
3/7/08

Braden

Braden
3/6/08

Braden

Braden
3/6/08

Braden

Braden
3/6/08

Braden

Braden
3/5/08

Braden

Braden
3/5/08 Photo by Aunt Paula

Braden

Braden
3/3/08 With his mittens and hat to warm him up after his bath.

Braden

Braden
3/3/08

Braden

Braden
3/3/08

Braden

Braden
3/3/08

Braden

Braden
3/3/08

Braden

Braden
2/29/08

Braden

Braden
2/29/08

Braden

Braden
2/29/08

Braden

Braden
2/29/08

Braden

Braden
2/28/08

Braden

Braden
2/27/08

Braden

Braden
2/27/08

Braden

Braden
2/27/08

Braden

Braden
2/26/08

Braden

Braden
2/26/08

Braden

Braden
2/05/08

Braden

Braden
2/25/08

Braden

Braden
2/22/08 Evening visit

Braden

Braden
2/22/08 Daddy's a little better at taking my photo.

Braden

Braden
2/22/08 This is what happens when Mommy forgets to turn off the flash.

Braden

Braden
2/18/08 You can see he is still very little even though he's reached 2 lbs.

Braden

Braden
2/18/08 Look zero tubes :-)

Braden

Braden
2/18/08

Braden

Braden
2/16/08 Is that a smile on his little face:-)

Braden

Braden
2/16/08

Braden

Braden
2/16/08

Braden

Braden
2/16/08

Braden

Braden
2/16/08 Still off the vent what a trooper.

Braden

Braden
2/14/08

Braden

Braden
2/14/08

Braden

Braden
2/12/08

Braden

Braden
2/11/08

Braden

Braden
2/11/08 Braden on his camo and frogs blanket. Very Cute.

Braden

Braden
2/11/08

Braden

Braden
2/11/08

Braden

Braden
2/7/08

Braden

Braden
2/6/08

Braden

Braden
On his own blue bunny blanket given to him by Judy G.. :-)

Braden

Braden
2/6/08 with his purple passy

Braden

Braden
2-4-08 Sometimes it's just too hard to get a non blurry shot. He is so small. But, this is a picture without tape on his chin.

Braden

Braden
2/2/08

Braden

Braden
2/2/08

Braden

Braden

Braden

Braden

Braden

Braden
2-1-08

Braden

Braden
Our little superman 2-1-08

Braden

Braden
1-29-08

Braden's new hat

Braden's new hat
1/29/08

Braden

Braden
1-28-08

Braden

Braden
1-28-08

Braden

Braden
1-25-08

Braden

Braden
1-25-08

Braden

Braden
1-21-08 All I want to do is sleep.

Kaleigh

Kaleigh
1-21-08 Both eyes open and a non blurry picture. Thank you Daddy.

Kaleigh

Kaleigh
1-21-08 with both eyes open. Mommy had a hard time with the camera so my apologies for the blurred photo.

Braden

Braden
1/20/08 Little Kaleigh's photo last nite didn't come out. They had her in the dark so it was difficult to get a good shot. :-(

Braden John

Braden John
1-19-08 Still sleeping away and really tired but doing very well.

Kaleigh Grace

Kaleigh Grace
1-19-08 She doesn't look so comfortable but they had just flipped her back on her back. She would rather be on her belly.

Kaleigh

Kaleigh
1-19-08 Good pic of her little face.

Braden

Braden
1-19-08 resting peacefully from a hard day of breathing on his own.

Braden

Braden
1-18-08 with his purple passy

Kaleigh

Kaleigh
1-18-08 evening

Kaleigh 1-18-08

Kaleigh 1-18-08
Our little hero has showed us that she is a fighter.

Braden

Braden
1-18-08 first day off his ventilator. :-)

Kaleigh 1-17-08

Kaleigh 1-17-08
Resting so she can get stronger.

Braden 1-17-08

Braden 1-17-08
Has his lamp off today. So we can see his cute little face.

Kaleigh

Kaleigh
Laying on her pink gingham blanket. They just changed out that morning.

Braden

Braden
That's Mommy's hand on Braden's little head. In an effort to calm him.

Kaleigh

Kaleigh
They had Kaleigh on her side today. What a large diaper she has on.

Braden

Braden
Loves to sleep on his tummy. Kaleigh likes it too.

Braden

Braden
1/14/08 Stretched out and relaxed

Kaleigh

Kaleigh
1/14/08 crinkling her forhead

kaleigh grace

kaleigh grace
1/12/08

Braden John

Braden John
1/12/08

Blog Archive

About Me

My photo

I am a stay at home Mommy to two beautiful boys ages 7 and 5.  I am also Mommy to one little girl who blessed us with 13 days of life.  Our road may be crazy and full of surprises but in this household Autism exist but doesn't define who my children are or will become.  I am also a blogger.  I love to write about our families crazy journey through life.  We love, laugh and suffer sometimes but we stick together and always seem to keep growing and going.